About tests–and keeping things in perspective
I’m a lot tougher than I used to be. Tests I’ve always dreaded don’t seem so bad anymore. I’d, like to share a few tips that I find helps make things a bit easier to take. Here’s a quick synopsis of...
View ArticleLessons learned: My 2nd opinion in Iowa (Part One)
I learned so much on my trip to University of Iowa Hospital to meet with Dr. Tricot. The guy is brilliant–with a caring bedside manor as a bonus. But he’s tough. Dr. Tricot believes you should hit...
View ArticleLessons learned: My 2nd opinion in Iowa (Part Two)
What did my test results show, and what does Dr. Tricot propose we do about it? I’ll be honest. There’s a reason why doctors prefer to go over test results together, in person. Sitting with Dr. Tricot...
View ArticleLessons learned: My 2nd opinion in Iowa (Part Three)
My health care team is faced with a complicated dilemma. On one hand, pomalidomide/dexamethasone therapy continues to whittle my numbers down; my M-spike has systematically dropped from 0.7 to 0.2...
View ArticleWhy can’t I get my doctors to step up and help me!
Last night I had the opportunity to interview one of the busiest stem cell transplant experts in the United States: Dr. William Bensinger from Seattle. I try not to ask personal medical questions...
View ArticleLong shot or not, Iowa City here I come!
I’d made my decision: no transplant. The majority of myeloma experts–especially transplant docs–agreed. So did Pattie. Then a single phone call changed it all. Pattie and I had literally just...
View ArticleDecision time: modified auto, allo or drug roulette? (Part One)
I ended Saturday’s post this way: “I’ve had an epiphany. I like the sound of ‘in my future.’ This has been a game changing week for me, full of amazing coincidences, reaffirming phone calls–and...
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